Sickle cell disease is a complex disease. Good quality medical care from doctors and nurses who know a lot about the disease can help prevent some serious problems. Often the best choice is a hematologist (a doctor who specializes in blood diseases) working with a team of specialists.

It is very important that every person or family with a young child with sickle cell disease have a plan for how to get help immediately, at any hour, if there’s a problem. Be sure to find a place that will have access to your medical records or bring a copy.
Go to an emergency room or urgent care facility right away for:

• Fever above 101° F
• Difficulty breathing
• Chest pain
• Abdominal (belly) swelling
• Severe headache
• Sudden weakness or loss of feeling and movement
• Seizure
• Painful erection of the penis that lasts more than 4 hours

Call a doctor right away for:
.           Pain anywhere in the body that will not go away with treatment at home
.           Any sudden problem with vision
Source:
Department of Health and Human Services